What’s new
Campaign
Patient Safety Commissioner responds to questions including how she is seeking further information on how safety information is being shared.
Campaign
MHRA FOI requests show UK decision to remove monitoring request from Direct Healthcare Professional Communication and the Summary of Product Characteristics.
Information
NHS updates websites with risk of meningioma. We have updated the description of our link and added further links to show the differences.
We are women diagnosed with meningiomas after long term use of Depo-Provera.
We started this website because finding clear information was so hard. We were piecing together a complicated jigsaw while dealing with the emotional, cognitive and physical impacts of our diagnoses. We want to make it easier for others by pulling everything into one place.
We do not have medical or legal expertise. We want to provide a one stop shop to the information that has helped us.
Information hub
Please Note: This site is a directory of resources for informational purposes only and does not provide medical or legal advice. By using this site, you agree to our full Terms and Disclaimer.
Depo-Provera, meningioma and the link between them
Starting at the beginning with what Depo-Provera is, what a meningioma is and the evidence of a link.
What you may want to know if you have used Depo-Provera
Firstly, don’t panic! Here we provide links to information such as latest overviews and brain tumour symptoms.
If you have been diagnosed with meningioma
This is the information we have found helpful after diagnosis and commonly get asked for on our Facebook group.
We are campaigning for awareness, change and justice.
We are tired of fighting to be heard, being dismissed, not being provided with the information we need to make informed decisions about our own healthcare. The healthcare system needs to do better, including the monitoring of medications post-market.
We have been in the media sharing our stories to raise awareness.
